Going on three days’ worth horrible bone pain. Nothing attenuates it. Dr. is unsympathetic. I’m running a solid 9 on the pain scale and he suggests Tylenol in addition to the other meds I take. It does not work. He grumbles and gives me the mildest opioid there is.
I’m not a pill head; never have been. If I could have a couple of shots of Ruby Red, I’d probably feel better, but the thought of alcohol gives me waves of nausea.
I can’t find my ass with both hands anymore. It started November 4, when I got the call that there was a suspicious finding on my x ray. That day turned my world upside down.
CT scan followed the next few days, followed by a phone call that confirmed lung cancer.
The whirlwind of doctor visits, PET scans, MRIs, biopsies, and finally, a lobectomy of my upper left lobe. The tumor was huge, really. That was January 12. Pain still persists and shortness of breath is my best friend.
Next shock: I started chemo yesterday. Not because of mets, but to knock out any lingering microscopic cancer cells lurking in hidden tissue or organs The regimen is short but brutal. I get a triple dose of two drugs every three weeks. If I can handle it. I asked how long the side effects would last between doses and the answer was airy, but blunt. 4 to 5 days, but those few days would be hell on wheels. My hair is going to fall out soon. Nausea is already paying a visit, but I have good drugs for that when I remember to take them. I can look forward to mouth sores, more neuropathy, blood sugar swings, and weekly blood tests for white cell counts. Whee.
I can’t shoot a rifle anymore. The mediport excludes that. My left side has a pacemaker. I asked when I would get the port taken out and the nurse said, ‘never’. That hit hard. I will not be cured. What a kick in the ass. I have a small bit of gratitide for the port, though. My hands and arms are still bruised and tender from the needlepoint they performed for the lobectomy. Now all the blood draws can be done in my chest.
This next part is the most important.
My support system is amazing. I never expected the outpouring of care and love from the people I know even though I’ve not met most of them. Offers of rides, monetary gifts, food, phone calls and texts, you name it. My independent life has been humbled. I’m just now learning to accept with gratitude the help and hope so freely given without expectation. This is the essence of love. I want to hide my face and weep for the grief I feel, but then I am reminded of so many people lifting me up and gladly carrying me, and so I won’t give up. I will never give up.
Nothing but a dream of getting out to the place where horizons are buildings, people, noise, hurry, excitement, HAPPINESS
Leave behind silence. Leave behind ceaseless wind. Leave behind a curve of unspoken secrets of those back there in the quiet terror
Keep close. And late at night, take out in a spasm of regret the splashes of ugly memories on those who would rather forget. In the silent aftermath of desperate longing for absolution, the spill of harsh kitchen light and tickticktick of the stupid clock that sees all and knows nothing.
It never goes away, those dark grindings of heat and cold that pass through landscapes alive with voices crying
A passing train offers golden squares of light where people are laughing and talking and pretending to be normal but nobody is really normal
Another generation of lust and dust yearns to find the horizon of freedom in the western sky
I washed my sheets yesterday. I moved my bed a foot. I cooked for the first time in two months-no, three. I threw away one more useless item.
Good night’s sleep by my standards means that I woke up fewer than ten times and fell asleep again before the night clerk at Hotel Anxiety rang the bell. I had a good night’s sleep.
No clean sheets, though. They are drying now. I slept on a bare mattress, contrary to every tenet of home training I had. I did drag the covers off my absent roommate’s bed (she’s temporarily in a nursing home. I hope.) and her cat immediately found a corner of the blanket to knead and suck. That poor feral baby slept against my legs all night, her delicate ethereal weight letting me know that she exists in a sad, grieving place of confusion.
Two cups of black coffee have a sedative effect. Feral kitty and and Black kitty settle in: her at my calves, him down my back. I think they like this routine.
Lunch is leftovers. I wanted a fish sandwich. I’m lying. I wanted two fish sandwiches. The echoes of depression voices channeled by my mother, filtered by my guilt, amplified by my depression keep me at home, in slippers, the clothes I’ve slept in for four days, and well, shit, it’s Monday.
Tomorrow might be better. I might be able to slog through the mud and fog again. Today, today continues.
I put a new roll of toilet paper . . . On the holder. It felt like I’d completed a workout in the rain barefooted.
Depression is a catch-all term for a whole plethora of symptoms relating to the psychological and physical inability to function like normal people do in the real world. Allegedly. We depressives tend to not talk much about the various ways our depression will sabotage our efforts to function. I like to write. I like to create. Mostly, what I do is nothing. My bed calls me, dirty sheets and all. And every time I crawl under the covers, right before I sigh with exhaustion, I think, I should change the sheets and throw these in the washer and take out the trash and wash the dirty dishes and clean the kitty pan and . . .
Two hours later, the nap has succeeded in making me feel worse. I still can’t move, though. I should hang up those clothes. I should go visit my friend in the nursing home. I need to write. I have some orders I could be working on. Those dishes aren’t cleaning themselves. Those sheets are getting sadder by the minute.
Depression lowers the immune system. Being the misanthrope I am these days, about half the time I go out of the house, I get sick with something: bronchitis, stomach viruses, strained tendons, 6-5 and pick’em.
My truck had four active recalls on it when I took it in for work. 24 hours later, I felt like a new deckhand working a tuna boat on the Atlantic in January with a violent storm blowing in. My cat curled up on my head, all 17 pounds of him, purring like a kitty generator. I firmly believe that my fever would have lasted at least another day if not for his medical intervention. As soon as I started sweating, he moved down to my icy feet and draped himself over them until they warmed up. Three days later, I’m still not well physically. Kitty did check on me last night, delicately licked my eyelid, and settled down for a nap on my painful shoulder, purring contentedly.
The first glimmer of a break in the clouds just happened a few minutes ago. You see, I try to listen to comedy bits, and they say laughter is the best medicine. It’s actually more like a vitamin supplement: the placebo effect temporarily supplants the depression. This small window of not-feeling-hideous could be used to wash the sheets, I suppose. I’m going to try it, see if this actually makes it to the bedroom. If it does, Ch. 2 might be a progress report.